Tuesday, February 2, 2016

Health Coaching for Breast Cancer Survivors: Going from Surviving to Thriving


Integrative Health Coaching for Breast Cancer Survivors:  Creating lasting lifestyle changes to live your best life

Introduction

Health coaching is a relatively new approach to lifestyle and lifestyle change that can be very beneficial – these lifestyle factors are primarily nutritional guidelines, physical fitness or exercise, and stress management or relaxation techniques.  Most people actually know what healthy lifestyle behaviors are, but can have a very difficult time making or sustaining the necessary changes.  Therefore, health coaching after a breast cancer diagnosis, can be very important because it will help to promote an optimal quality of life and healing, as well as help to prevent a possible cancer recurrence.

What is Health Coaching?

Health coaching can be defined as the process of helping clients and patients gain the knowledge, skills, tools and confidence to become active participants and owners in their care, so that they reach their self-identified health-related goals.  During this process, there are a number of techniques that are used, but two of the most important are positive psychology and mindfulness.  Some of the central characteristics of this health coaching process also include client or patient centered care, self-discovery, a learning or educational process, supportive relationships, drawing on all important resources and accountability. 

Another key feature of health coaching is creating a health and wellness vision, as well as three-month goals and weekly or biweekly goals.  Health coaches are most often nurses, nutritionists, mental health professionals, physical therapists or exercise physiologists, or have other similar health related backgrounds.

Positive psychology is an important cornerstone of health coaching because it helps to draw on people’s strengths and successful experiences.  Our healthcare system has really been more of a disease care system, and as we have seen, has not been very successful at promoting health and wellbeing or creating effective lifestyle changes.  Positive psychology brings other beneficial approaches as well, such as a positivity ratio of 3:1 (ratio of positive to negative thoughts and comments), which has been found to be associated with happier people, and a 5:1 ratio for happier marriages – research suggested that 80 % of people have a positivity ratio below 3:1.  This is important because happier people are more flexible and creative, and more importantly for breast cancer survivors, tend to be healthier and have greater longevity.

Mindfulness is another cornerstone of health coaching, for both the client and the coach.  Mindfulness is important for stress management and sets the tone for a coaching process that is most helpful for clients to achieve their health-related goals and for health coaches to most effectively support clients in this process.  With both clients and coaches being fully present in a non-judgmental and mindful environment, it becomes a safe place to explore any thoughts or feelings that arise.  This can be a sacred place, where health-promoting and healing steps can occur, by discussing a variety of concerns or issues that range from the practical to the spiritual – one example would be to put the right healthcare team in place, that could include a good primary care physician, oncologist, counselor or psychologist,  physical therapist, nutritionist, health coach and/or any other needed or desired practitioners.  Another example would be to talk about fears, losses or other painful experiences and insure a connection with a counselor, psychologist or other practitioner who can more thoroughly and effectively process these feelings. 

As we know, cancer survivorship often puts the most severe stresses and strains on people who may need to make important decisions about their care and lifestyle, or may be facing their mortality.  In addition, the cancer experience can have a profound impact on relationships with spouses, and with family members and friends, vital to a healthy, loving and healing social support system.

Positive Study Results for Health Coaching for Cancer Survivors

One cancer survivor study of mostly women with breast cancer found that wellness coaching significantly improved depression, anxiety, and quality of life (QOL- see reference).  Also, participant self-reports suggested improvement in vegetable and fruit consumption, as well as weight and body-mass index (BMI).

Practical Steps to Get Health Coaching

Now that we have defined and described health coaching, this next section will more specifically give examples and scenarios of who would benefit most from health coaching, how it is done and what the process would look like.

Although health coaching is most helpful for people who have completed active treatment (most commonly, surgery, chemotherapy and/or radiation therapy), health coaching during treatment can also be beneficial.  For those who have completed treatment, the focus can be totally on healing physically, emotionally and spiritually.   As many people have experienced however, the cancer survivorship journey with ongoing treatment can often feel like a roller coaster so health coaching can be a helpful and a useful tool as part of an overall program that addresses a range of symptoms, side effects and other issues that may develop.

Who would be helped most by health coaching?

*    Women who need to lose weight (decreasing insulin resistance and the risk of a cancer recurrence)
*    Those who still have fatigue and/or brain fog
*    Those who may still feel some depression and/or anxiety (these women  also need to be seeing a counselor or other mental health practitioner)
*    Those who are having a difficult time putting their lives and lifestyles back together after treatment is completed
*    Those who feel like there is little coordination of aftercare
*    Those who still feel that they need to heal more and/or feel overwhelmed

Creating a Health and Wellness Vision, Three Month Goals and Weekly or Biweekly Goals

Clients begin coaching by puting together a meaningful health vision that can be inspiring and motivating, as well as three month and weekly goals that help them focus their actions to help them achieve their health vision.  The developed goals are S.M.A.R.T. goals – specific, measurable, actionable, realistic, and timely.  When the goals are reached, great results occur, however, when they are not met or are only partially met, there are lessons to be learned.  The coach then discusses with the client any insights gained from the process, and can provide reflections, feedback, problem-solving tips, when they are invited to do so.  Coaches cooperate with clients to better understand challenges or barriers and develop approaches that may help clients to move forward more effectively and be more successful.   This also helps to develop trust, respect and rapport.

Other benefits of Health Coaching for Cancer Survivors

Experienced health coaches, who also have significant expertise working with cancer survivors, can help support the development of healthy lifestyles, as well as help to sort through differences of opinion regarding healthy dietary guidelines, nutritional supplementation, physical fitness/exercise programs, and emotional and spiritual well-being.  Creating this healthy lifestyle is essential for feeling comfortable and confident with your lifestyle program, as well as optimizing your physical and emotional health and well-being.

Coaching experiences – these come more from my general coaching practice since I am currently adapting my programs for cancer survivors and building that part of my coaching practice

Wendy* – I had met Wendy originally to provide nutritional counseling to help her lose weight.  She did well for a while (lost 15 pounds) and then gained it all back.  We reconnected after I got my coaching certification and worked together using the health coaching structure.  What we found is that she would do well until she came to challenging issues related to her diet or maintaining her lifestyle program when she had so much other work to do (she was the Director of a non-profit organization in Philadelphia).  What she discovered is that she was much better taking care of others and her work responsibilities, which often prevented her from taking the time that she needed for herself.   Secondly, we found that when she got to points where she was unsure about what steps to take, she gave up.  In her Director role however, she would face many similar business and related decisions that needed to be made and was very good at doing that - so she had the ability, but just needed to stay focused and follow through, supported by our coaching relationship.

Jack* – was about 50 pounds overweight and had diabetes when we first started to work together.  He was very good with his exercise regimen but had much more difficulty controlling his eating because he was a good cook, and truly enjoyed food and the company of family and friends that often went with it.  With my weekly or biweekly support and encouragement, we designed a framework that allowed him to lose 40 pounds and help his blood sugar return to normal levels.  We are now working on a clear and easy framework that promotes weight maintenance and well-being

Group coaching experience

I have just started to do group health coaching for cancer survivors - this is a good way to provide lifestyle information and coaching, within a group format that can take advantage of group dynamics and be less costly.  The first group that I ran was a smaller group of 3 cancer survivors but they all reported that they got good information, insights and suggestions about nutrition, fitness and stress management. They also felt that the coaching format, along with the ability to look at all of these issues together, was very helpful.   

Steps to finding the right health coach:

1.    Ask your healthcare providers to recommend someone or look at other reliable sources for health coaches.
2.    See what training, experience and certification they have – check their website or ask them about these.
3.    Talk with them, and ask them some questions to make sure you feel comfortable with their responses/approaches – it should be a good fit.

Concluding Thoughts and Future Directions

Health coaching is an exciting and new approach to healthy lifestyle and well-being for cancer survivors.   It is another potentially important part of an overall team of practitioners and approaches that can help to maximize quality of life and cancer survivorship outcomes when support is needed most.  Accumulating experiences and research will hopefully create greater awareness, acceptance and use of the health coaching framework and approaches in private practices, cancer centers and academic oncology departments.

References and Other Resources

Galantino ML, Schmid P, Milos A, et al.  Longitudinal benefits of wellness coaching interventions for cancer survivors.  Inter J Interdisciplinary Soc Sci  2009;4:42-57.

Positivity: Top-notch research reveals the upward spiral that will change your life, Barbara L. Fredrickson, PhD, Crown Publishing Group, New York, 2009.

Full Catastrophe Living (revised edition): Using the wisdom of your body and mind to face stress, pain and illness, John Kabat Zinn, Bantom Books, New York, 2013.

The gifts of imperfection: let go of who you think you’re supposed to be and embrace who you are, Brene Brown, Hazelden Books, Minnesota, 2010.

Changing for good: a revolutionary six-stage program for overcoming bad habits and moving your life forward.  James O. Prochaska, John C. Norcross and Carlo C. DiClemente.  HarperCollins Publishers, New York, 2006.

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